United Mitochondrial Disease Foundation
United Mitochondrial Disease Foundation (UMDF)
Leading US patient advocacy organization for mitochondrial diseases including LHON. Funds research grants, organizes annual Mitochondrial Medicine symposium, and maintains patient registry. Publishes member newsletters that could syndicate research digests from this project.
Research focus
Public profiles
- Website: https://umdf.org/
Contact is made via official institutional channels, not private email. To request removal, email the project.
UMDF is a natural partner for this project. They have the audience (thousands of affected families), the credibility (scientific advisory board), and the need (members constantly asking “what’s new in research”). A newsletter partnership could deliver verified findings to exactly the community that benefits most.
Project outreach status
Not yet contacted