Patient advocacy organization International
International Mito Patients
International Mito Patients (IMP)
Coalition of 16 national patient organizations since 2011. Coordinates international advocacy and represents the global mitochondrial disease patient community. Maintains dedicated LHON resources and connects national LHON advocacy groups.
Research focus
patient advocacy coalitioninternational coordinationmitochondrial disease
Public profiles
- Website: https://mitopatients.org/
Contact is made via official institutional channels, not private email. To request removal, email the project.
IMP is the most efficient outreach target for international distribution — a single partnership could reach 16 national LHON communities. If the project can offer IMP a co-branded monthly LHON research digest, the distribution footprint would multiply significantly beyond any single country.
Project outreach status
Not yet contacted
Profile last verified: 2026-04-19