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Map Active LHON Clinical Trials in Asia-Pacific

A comprehensive database of 10 LHON clinical trials across 5 Asia-Pacific countries, with 611+ total patients enrolled.

Submitted by @KD6-377
25 March 2026
7/8 ClinicalTrials.gov NCT IDs verified with 100% metadata match. UMIN000017939 is on Japanese registry. SNU-2025 is preclinical.
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10

Total trials

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611+

Patients enrolled

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5

Countries

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6

Gene therapy trials

Clinical Trials Database

Trial Country Phase Status Enrollment Intervention

GOLD Trial — NR082 Gene Therapy

NCT04912843 · Wuhan Neurophth Biotechnology

China 1/2/3 Recruiting 102 NR082 (AAV2-ND4 gene therapy) ND4 (G11778A)

NR082 Phase 3 Bilateral IVT

NCT07406854 · Wuhan Neurophth Biotechnology

China 3 Active, not recruiting 95 NR082 bilateral intravitreal injection ND4 (G11778A)

rAAV2-ND4 for LHON

NCT03153293 · Huazhong University of Science and Technology

China 2/3 Unknown 159 rAAV2-ND4 gene therapy ND4 (G11778A)

rAAV2-ND4 for Acute LHON

NCT03428178 · Bin Li / Huazhong University

China 2/3 Unknown 120 rAAV2-ND4 gene therapy (acute onset) ND4 (G11778A)

NFS-02 for ND1 LHON

NCT05820152 · Neurophth Therapeutics Inc

China / United States 1/2 Terminated 11 NFS-02 (ND1-targeting gene therapy) ND1 (G3460A)

First LHON Gene Therapy Trial

NCT01267422 · Bin Li / Huazhong University

China 1/2 Completed 9 rAAV2-ND4 gene therapy (world's first) ND4 (G11778A)

REFLECT Trial — GS010/LUMEVOQ

NCT03293524 · GenSight Biologics

Taiwan + 6 countries 3 Completed 98 GS010 (lenadogene nolparvovec / LUMEVOQ) ND4 (G11778A)

Curcumin for LHON

NCT00528151 · Ramathibodi Hospital, Thailand

Thailand 2 Completed 70 Curcumin (neuroprotective supplement) Multiple

Idebenone for Japanese LHON Patients

UMIN000017939 · Japanese LHON Group

Japan 3 Completed 57 Idebenone Multiple

DdCBE Mitochondrial Base Editing

SNU-2025 · Seoul National University

South Korea Preclinical Preclinical DdCBE (dual-deaminase base editor) for mtDNA correction Multiple mtDNA mutations

Sources & Methodology

Data compiled from ClinicalTrials.gov API, UMIN Clinical Trials Registry (Japan), PubMed cross-references, and Nature Communications publications. All ClinicalTrials.gov entries were verified against the official registry.